The XP Family Support Group (XPFSG) is committed to helping people with the rare genetic disorder called Xeroderma Pigmentosum, or XP. People with this condition cannot tolerate the ultraviolet radiation in sunlight, so even a few minutes of sun can cause cell damage that inevitably turns to cancer.
XP is extremely rare, affecting one child in one million, but a few years ago people discovered a remote village in Guatemala that had not just one but 26 cases of XP, making it one of the most unusual disease clusters in the world.
Upon hearing about the village, XPFSG knew they had to get involved, and within a few months, they had assembled a team of five individuals, including one doctor to travel to this extremely remote village in Guatemala to see how they could help. No one could prepare them for what they found.
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We need your help!
By contributing, you help us to:
• Make yearly trips to Guatemala to help maintain these children’s health by performing life saving operations.
• Develop a documentary about the village, which will help us garner future funds and inspire interest in drug and product development. |
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